MaryO's posts with tag: testing
| Start: | Mar 13, '08 7:30p | | End: | Mar 13, '08 8:00p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Listen as Robin Smith (staticnrg) and Mary O'Connor (MaryO) co-host Cushing's message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing's is and what the symptoms are.
| Start: | Mar 6, '08 7:30p | | End: | Mar 6, '08 8:00p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said "endocrine". She didn't figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help.
Link: http://www.blogtalkradio.com/CushingsHelpThis new series of Cushing's Voice Chats and Interviews is helping to give information and support to current Cushing's patients as well as reaching out to those who are just starting to think about Cushing's
| Start: | Jan 10, '08 6:30p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Thanks to the success of last night's first Voice Chats, we will be having them every Thursday night through January at 6:30 PM eastern. There is a call-in number if you want to share with the hostess and, if you can't make it at that time, archives will be available.
Robin (Staticnrg) explains that diurnal variation is one of the ways to diagnose Cushing's. It's typical of those of us who have Cushing's.
Robin says "If you have pseudo-Cushing's, this variation doesn't happen. A typical/normal person has their highest cortisol around 8 a.m. and it goes down incrementally until it is around zero at midnight. This is true of a person with pseudo Cushing's, too. A person with Cushing's Disease/Syndrome will have the variation shown in the link above. It's important to have this measured. The easiest way to find out is to have late-night serum cortisol measurements (around 11 p.m.) to see what it is at that time of night. If you have elevated late-night cortisols, it indicates Cushing's Syndrome/Disease. One test in the a.m. will not tell you enough information.
Stress affects everyone's cortisol. But elevated cortisol over a period of time is due to something other than "stress". And it hurts your body. Even it is intermittent (cyclical), it is very damaging, but harder to diagnose.
I hope you will go for more testing. I believe you need to find a doctor who will test 8 a.m. cortisol levels and late-night cortisol levels, preferably by both salivary and serum tests. Also, high Urinary Free Cortisol (UFC) levels are the "gold-standard" for Cushing's and if high, are very indicative. However, many of us don't have high UFC's but do have high salivary and serum levels. You need MUCH more testing to determine if you have Cushing's and to determine if your diurnal rhythm is out-of-whack!"
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