MaryO's posts with tag: surgery
| Start: | Jul 17, '08 7:30p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Kate (Fairley). Kate (Fairley) has had symptoms since 1991. She has had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituiarism and a CSF leak. Kate writes in her message board signature: * 1991 - Symptoms began * Oct. 4, 2006 - Testing begins with Dr. F * Dec. 24, 2006 - Dx of Episodic Cushing's Disease * Jan. 5, 2007 - 1st pit surgery with Dr. J in P'burgh * April 3, 2007 - Confirmation of path-proven ACTH-secreting adenoma * June 18-22, 2007 - Testing with Dr. L for recurrence at Swedish in Seattle * July 13, 2007 - Dx of Recurrence of Episodic Cushing's Disease * July 26, 2007 - Dr. McC @ MD Anderson confirms existence of recurrent tumor on right side * July 27, 2007 - 2nd pit surgery with Dr. J in P'burgh; removal of tumor from right side of pit * Oct. 10, 2007 - CSF leak repair surgery * March 2008 - recurrence suspected but cannot test due to cortisol-lowering narcotics for suspected osteonecrosis of left hip. * Idiopathic Intracranial Hypertension, panhypopituiarism, CSF leak, and, for now.... * No cure for me. sad.gif Pituitary Cushings: Kate and Dr. Ted Friedman on National Geographic TV were featured on the National Geographic channel. The show, called the Science of Obesity, has a segment on Cushing's syndrome. Today, 127 million adult Americans are considered overweight, but few reach the extreme proportions of the exceptionally obese. What are the physical stresses of weighing more than 500 pounds and what steps can reverse it? NGC provides an understanding of what happens inside the bodies of these massive people & why a person can pack on hundreds more pounds than those with typical weight challenges. The show explores the genetics behind weight gain & medical advances available to help prevent it. I hope that all of you can watch this. Please consider contacting your local media about doing your story! There is still much work to do to increase Cushing's awareness. Attend Kate's Interview on July 17, 2008
Monica (Monicaroni) and Crystal (Vinesqueen), March 27, 2008. The Call-In number is (646) 200-0162. Crystal and Monica went through every step of their Cushing's journey together--tested together, had surgeries the same days, and have become best friends because of it. Monica was diagnosed with Cyclical Cushing's. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. Both surgeries were in Seattle. She is now free of Cushing's and am on the road to recovery! Monica is a professional violinist. From Monica's bio Crystal had pituitary surgery surgery 11/06 followed by a BLA 12/06. She also had a sinus excavation 2/06 and sinus surgery 5/07. Her last surgery was an internal hernia repair 8/07 Her blog is available at http://vinesqueen.blogspot.com/ 
| Start: | Mar 13, '08 7:30p | | End: | Mar 13, '08 8:00p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Listen as Robin Smith (staticnrg) and Mary O'Connor (MaryO) co-host Cushing's message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing's is and what the symptoms are.
| Start: | Mar 6, '08 7:30p | | End: | Mar 6, '08 8:00p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said "endocrine". She didn't figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help.
Surgery could cure rare Cushing's diseaseStory by JessicaLovell (Contact) 9:15 p.m. Saturday, July 22, 2006 This video requires the free QuickTime 7 plug-in. Download: Cushing’s disease brought four women together for what they fondly refer to as their “Cushie Party.” “I don’t know about you guys, but my family didn’t even believe me,” Jaimie Augustine***, Cushing’s patient, said. “You don’t gain 70 pounds in 7 months and have something not be wrong.” Cushing’s disease is caused by a rare tumor in the pituitary gland. The tumor itself is not the problem, but it causes the body to produce too muchof the hormone cortisol. It’s the excess cortisol that wreaks havoc on thebody. “I started having hair growth on my chin, and on my arms,” Augustine said. “I got purple stretch marks on my stomach.” It didn’t matter if Augustine ate as little as a thousand calories a day, she still gained 100 pounds. It took five years before Jaimie’s doctors pieced together her symptoms and treated her for Cushing’s. “Most centers that deal with this would accept that the first line oftreatment is pituitary surgery, brain surgery,” Dr. William Ludlam, endocrinologist, said. During surgery, doctors remove the tumor on the pituitary gland. “It’s still actually a difficult surgery, because these tumors are typically very liquidy, soft tumors and can ooze and go places,” Dr. Ludlam said. Augustine’s surgery was a success, and she began to lose weight after doctors removed the tumor. While Augustine said she can’t wait to have her body back, she admitted Cushing’s gave her a different perspective on life. More Information Dr. Ludlam cautions that pituitary surgery works dramatically for some patients, but not for all. If you have Cushing’s, or think you have symptoms, you can find out more information on the disease, or find support near you. *** Message Board Members. The person sitting next to Jaimie against the head board is Kristin (lookingforanswers), Amy (kalimae) is the blonde and the one in the yellow top is Krystine. More about Dr. William Ludlam
Link: http://www.cushings-help.comThis site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Cushing's is a debilitating disease which causes the overproduction of cortisol, the substance that regulates blood pressure, and the metabolism of proteins, carbohydrates and fats. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of the hormone cortisol. It can be caused by a tumor of the pituitary gland, adrenal gland, elsewhere in the body (ectopic) or by excessive steroid use.
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