MaryO's posts with tag: adrenal crisis
Monica (Monicaroni) and Crystal (Vinesqueen), March 27, 2008. The Call-In number is (646) 200-0162. Crystal and Monica went through every step of their Cushing's journey together--tested together, had surgeries the same days, and have become best friends because of it. Monica was diagnosed with Cyclical Cushing's. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. Both surgeries were in Seattle. She is now free of Cushing's and am on the road to recovery! Monica is a professional violinist. From Monica's bio Crystal had pituitary surgery surgery 11/06 followed by a BLA 12/06. She also had a sinus excavation 2/06 and sinus surgery 5/07. Her last surgery was an internal hernia repair 8/07 Her blog is available at http://vinesqueen.blogspot.com/ 
| Start: | Mar 20, '08 7:30p | | End: | Mar 20, '08 8:00p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Karen (Rooon55), part 2, March 20, 2008. Karen's disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing's, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn't advise Vermont's Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing's disease - another Cushing's patient did.
| Start: | Mar 13, '08 7:30p | | End: | Mar 13, '08 8:00p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Listen as Robin Smith (staticnrg) and Mary O'Connor (MaryO) co-host Cushing's message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing's is and what the symptoms are.
| Start: | Mar 6, '08 7:30p | | End: | Mar 6, '08 8:00p | | Location: | http://www.blogtalkradio.com/CushingsHelp |
Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said "endocrine". She didn't figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help.
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